Posted by tim in I Feel Sick on February 8, 2025

I've blogged about it before, but things aren't getting any better.

I can't think of a time, going as far back as my mind allows, when I didn't have some sort of a symptom related to this. When I was young, my parents and I assumed it was a pinched nerve in my arm or something. As I've gotten older, I've noticed the patterns, though. It's all getting way more frequent, and far more painful or otherwise disruptive.

The most recent symptoms are just repeats of things I've had before:

  • Tactile Allodynia - Pain sensation to a light touch, even triggerable by air movement
  • Twitching - Looks like a tremor, but is very localized to a hand/finger or a foot/toe, lasting several minutes if not days, and has always been on my left side
  • Muscle cramping/spasming - I can't find a clear medical distinction between the two, so I've lumped them together. It comes and goes, though, and is almost always in my left arm, left hand, left leg, or left foot.
  • Aphasia - I lose the ability to process things like words, sounds, or other things. It's not that I can't hear, or that I don't know how to read or write (this blog alone should tell you that), but rather my brain loses the ability to make sense of things. Music will sound just like noises, speech will sound similar, but turning it into useful, comprehensible things just completely shuts down.
  • Middle Ear Myoclonus - I've had a hearing test and I have excellent hearing, but I get this thing in my right ear where it sounds and feels like someone is physically tapping my eardrum. The neurologic audiologist I saw said it's completely benign and my hearing system is otherwise perfect.

Today, It's a cramping/spasming thing, but in the weirdest way. It feels like I slammed 3 of the fingers on my left hand in a door. It's the proximal phalanx, not in any of the joints. As I'm typing this, I'm feeling it elsewhere, like in the same relative bone in my thumb. It's excruciating, and I'm just waiting for the meds (Gabapentin, Cyclobenzaprine) to do their thing.

I just want a doctor to pay attention to all of these things and understand how disruptive they are to my life and help me to identify what it actually is and how to treat/manage/cure it beyond what I've been doing.

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